![]() ![]() In fact, lymphedema is a side effect of having PWS and, because it is a congenital disease, I was born and have lived with primary lymphedema for nineteen years. Here is Isa-Bella’s story, in her own words. I hope you’re as inspired by her beautiful take on living with a chronic medical condition as I am! A doctor has never said to me that I have lymphedema-they’ve always told me that I have Parkes Weber Syndrome. ![]() I love it, and am so grateful to her for sharing her story with all of us! I’m sure she’s got her bad days, as we all do, but her personal commitment to living with confidence and using her lymphedema as a means of opening a meaningful dialogue seem to triumph. In fact, on first glance, the first thing I notice about her is not her leg but her glowing smile, and I see a person who is happy and full of love for herself. Looking at Isa-Bella’s photos, I don’t see someone who allows her medical condition to dictate her life. After talking to her, though, I see that it is-and not just for me, but for all of us, any of us, who live with chronic health issues or diseases. Stories like Isa-Bella’s always have a deep effect on me because I have a tendency to let my lymphedema get me down sometimes, and the freedom in which Isa-Bella speaks and lives is something I have always wanted but didn’t think was wholly possible. We got to talking and, as she shared her story with me, I was moved: despite the severity of her swelling and her compounded health issues, she maintains an incredibly inspiring outlook and infectiously positive attitude on life. A few weeks ago I received a friendly email from Isa-Bella Leclair, a young Canadian woman who had recently stumbled across the blog. ![]()
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